Seal of the State of Nevada

WHEREAS, Thrombocytopenia-Absent Radius (TAR) syndrome is a very rare genetic condition that is present at birth and is characterized by the absence of the long, thin bones of the forearms and by low levels of platelets in the blood; and

WHEREAS, this platelet deficiency usually appears during infancy and becomes less severe over time, in some cases the platelet levels of individuals become normal; and

WHEREAS, thrombocytopenia in individuals prevents normal blood clotting, resulting in bruising easily and frequent nosebleeds. Potentially life-threatening episodes of severe bleeding may occur in the brain and other organs, especially during the first year of life; and

WHEREAS, hemorrhages can damage the brain and lead intellectual disability. Affected children who survive this period and do not have damaging hemorrhages in the brain, usually have a normal life expectancy and normal intellectual development; and

WHEREAS, the severity of skeletal problems in TAR syndrome varies among affected individuals. In individuals, the radius is almost always missing in both arms and the ulna is sometimes underdeveloped or absent in one or both arms. Additionally, abnormalities of the hands exist, such as webbed or fused fingers or curved pinky fingers. Some people with TAR syndrome may have skeletal abnormalities affecting the upper arms, legs, or hip sockets; and

WHEREAS, during this month, it is important to raise awareness about Thrombocytopenia-Absent Radius syndrome and to help support those affected with this disorder and their families, as well as promote continued medical research and advancements;

NOW, THEREFORE, I, STEVE SISOLAK, GOVERNOR OF THE STATE OF NEVADA, do hereby proclaim the month of April 2022, as

NEVADA THROMBOCYTOPENIA-ABSENT RADIUS SYNDROME AWARENESS MONTH IN NEVADA

Footer State Seal

IN WITNESS WHEREOF, I have hereunto set my hand and caused the Great Seal of the State of Nevada to be affixed at the State Capitol in Carson City, this 17th day of March 2022.

Governor's signature