Seal of the State of Nevada

WHEREAS, Fabry disease is a progressive, destructive, inherited disorder that causes children and adults to experience many symptoms that diminish their quality of life, and may lead to premature death in adults due to strokes, kidney failure, and heart failure; and

WHEREAS, Fabry disease is caused by deficient activity of the lysosomal enzyme alpha-galactosidase A (AGAL) that results in buildup of lipids in the body causing cell and organ damage; and

WHEREAS, currently there is a definitive AGAL enzyme laboratory test and a couple of approved treatments available, but because the disease is severely under-diagnosed, many people live without an accurate diagnosis, or opportunity for treatment until after irreversible organ damage occurs; and

WHEREAS, successful newborn screening has been performed in several countries, yielding a prevalence ranging from 1:1,368 to 1:8,882 births. Statistically, there are between 350 to 2, 300 people in Nevada with Fabry disease; and

WHEREAS, health care providers and families should be aware of the many Fabry disease symptoms, and if warranted, obtain a gene test that can definitively assess the presence of this treatable disorder; and

WHEREAS, Fabry Disease Awareness Month in Nevada is proclaimed to recognize the challenges faced by those diagnosed with the disease and their family and friends. During this month we come together to learn more about recognizing symptoms, screening options, and diagnosing the disease. Together, Nevadans can support individuals and organizations making strides to improve the outcomes for those diagnosed with Fabry disease;

NOW, THEREFORE, I, STEVE SISOLAK, GOVERNOR OF THE STATE OF NEVADA, do hereby proclaim the month of April 2022, as

FABRY DISEASE AWARENESS MONTH IN NEVADA

Footer State Seal

IN WITNESS WHEREOF, I have hereunto set my hand and caused the Great Seal of the State of Nevada to be affixed at the State Capitol in Carson City, this 17th day of March 2022.

Governor's signature