Seal of the State of Nevada

WHEREAS, the good health and general well-being of the people of Nevada is strengthened by our awareness and understanding of a genetic disorder known as 4p- syndrome, with Wolf-Hirschhorn as the main syndrome; and

WHEREAS, children with 4p- syndrome are usually born with low birth weight and develop slowly, both cognitively and physically, compared to their same-age peers, and experience medical complications; and

WHEREAS, it is estimated that approximately 1,000 individuals in the United States have 4p- syndrome, though it is thought many remain undiagnosed; and

WHEREAS, we recognize and applaud the vital role which families and advocates of those who have 4p- syndrome play in helping our medical community to advance the knowledge of this syndrome; and

WHEREAS, dedicated professionals are presently involved in vital research to explore new therapies and diagnostic tools, and to offer hope to persons with 4p- syndrome; and

WHEREAS, this day is set aside from the rest to advocate for research into understanding the syndrome and to develop effective screening, improved therapies for early intervention and treatments; and

WHEREAS, the State of Nevada joins those dedicated to raising awareness of 4p- syndrome to have a positive and productive impact on the lives of all people affected by 4p- syndrome;

NOW, THEREFORE, I, STEVE SISOLAK, GOVERNOR OF THE STATE OF NEVADA, do hereby proclaim April 16, 2022, as

4p-/WOLF-HIRSCHHORN SYNDROME AWARENESS DAY IN NEVADA

Footer State Seal

IN WITNESS WHEREOF, I have hereunto set my hand and caused the Great Seal of the State of Nevada to be affixed at the State Capitol in Carson City, this 4th day of April, 2022

Governor's signature