Seal of the State of Nevada

WHEREAS, Approximately 1,500 people are diagnosed with desmoid tumors every year in the United States. Meaning that 5-6 people out of a million will be diagnosed with desmoid tumors each year; and

WHEREAS, Desmoid Tumors can occur anywhere in the body. Desmoid Tumors are usually found in the neck, leg, shoulder and abdomen. A desmoid tumor is an abnormal growth that comes from connective tissue, which is the tissue that provides strength and flexibility to areas such as bones, ligaments, and muscle; and

WHEREAS, Approximately 25 to 60 percent of patients who undergo surgery can have a local recurrence (returning at or near the original site). Surgery can cause significant morbidity to the wide margins needed to remove the whole tumor; and

WHEREAS, Desmoid Tumors are more prevalent in women than in men with a 2:1 ratio, and there are no racial or ethnic differences in susceptibility to this disease. Individuals between the ages of 15 and 60 are mostly affected, but desmoid tumors can also occur in very young children; and

WHEREAS, there is not one standard care of treatment for desmoid tumors. After diagnosis, the first line of treatment is to watch and wait because some desmoid tumors will regress or remain stable. Active surveillance requires the patient's medical team to carefully monitor the tumor via PET scans, MRI or CT scans; and

WHEREAS, in 5% to 10% of cases, desmoid tumors may run in families. Those diagnosed with Familial Adenomatous Polyposis, a rare syndrome that also runs in families, have a high risk of colorectal cancer and desmoid tumor. We know that some people with a family history of desmoid tumors have a change in a gene called adenomatous polyposis coli, or APC; and

WHEREAS, some people with a family history of desmoid tumors have a change in a gene called adenomatous polyposis coli, or APC. This change causes too much beta-catenin in parts of your cells. Too much of the protein beta-catenin can cause cells to grow when they shouldn't;

NOW, THEREFORE, I, STEVE SISOLAK, GOVERNOR OF THE STATE OF NEVADA, do hereby proclaim September 25, 2022, as


Footer State Seal

IN WITNESS WHEREOF, I have hereunto set my hand and caused the Great Seal of the State of Nevada to be affixed at the State Capitol in Carson City, this 4th day of October 2022

Governor's signature