Seal of the State of Nevada

WHEREAS, X-Linked Hypophosphatemia (XLH) is a whole-body, lifelong rare genetic disorder that affects the person since birth, childhood, adulthood and advanced age affecting the patient's bones, joints, dental, hearing, muscle and or nervous systems; and

WHEREAS, XLH affects approximately one in 20,000 newborns according to the National Institutes of Health (NIH); and

WHEREAS, the disease causes serious and debilitating symptoms that have a significant impact on the lives of those who suffer from XLH as well as their families; and

WHEREAS, patients affected by XLH and their families often encounter a variety of problems outside the illness itself, including difficulty in obtaining accurate and timely diagnoses, finding effective treatment options, and or being able to afford the appropriate treatment; and

WHEREAS, XLH is not a curable disease, however dedicated researchers around the world continue their efforts to understand how genetic mutations work with the hope that a cure will be found one day; and

WHEREAS, educational programs must be public and constant so that new parents and health providers can be exposed to the most up-to-date information;

NOW, THEREFORE, I, STEVE SISOLAK, GOVERNOR OF THE STATE OF NEVADA, do hereby proclaim June 23, 2021, as

XLH AWARENESS DAY IN NEVADA

Footer State Seal

IN WITNESS WHEREOF, I have hereunto set my hand and caused the Great Seal of the State of Nevada to be affixed at the State Capitol in Carson City, this 21st day of June 2021

Governor's signature