State of Nevada - A Proclamation by the Governor

 

WHEREAS, there are nearly 7,000 diseases and conditions considered rare, with each affecting fewer than 200,000 Americans in the United States, according to the National Institutes of Health; and

WHEREAS, while each of these diseases may affect small numbers of people, rare diseases as a group affect almost 30 million Americans; and

WHEREAS, many rare diseases are serious and debilitating conditions that have a significant impact on the lives of those affected; and

WHEREAS, while more than 450 drugs and biologics have been approved for the treatment of rare diseases according to the Food and Drug Administration, millions of Americans still have rare diseases for which there is no approved treatment; and

WHEREAS, individuals and families affected by rare diseases often experience problems such as diagnosis delay, difficulty finding a medical expert, and lack of access to treatments or ancillary services; and

WHEREAS, while the public is familiar with some rare diseases, many patients and families affected by less widely known rare diseases bear a large share of the burden of funding research and raising public awareness to support the search for treatments; and

WHEREAS, thousands of Nevadans are among those affected by rare diseases since nearly on in 10 Americans have a rare disease; and

WHEREAS, National Rare Disease Day has been organized to spread awareness and encourage patients, caregivers, medical professionals, researchers and companies developing products and treating rare diseases;

NOW, THEREFORE, I, BRIAN SANDOVAL, GOVERNOR OF THE STATE OF NEVADA, do hereby proclaim February 28, 2018 as

Rare Disease Day in Nevada

 

 Nevada State Seal                        Nevada State Governor, Secretary of State and Deputy Signatures