Proclamation Header

 

WHEREAS, Fabry disease is a progressive, destructive, inherited disorder that causes children and adults to suffer many symptoms that diminish their quality of life and may lead to premature death in adults due to strokes, kidney failure and heart failure; and

WHEREAS, this disease is caused by deficient activity of the enzyme alpha-galactosidase A that results in buildup of lipids in the body causing cell and organ damage; and

WHEREAS, there is an approved treatment available, but because the disease is severely under-diagnosed, many people suffer without an accurate diagnosis and opportunity for treatment until after irreversible organ damage occurs; and

WHEREAS, Fabry disease is inherited in an X-linked manner, historically estimated to occur in about 1 in 40,000 to 60,000 males and as many as twice this number of females may be affected but with more varied symptoms than males with classic disease; and

WHEREAS, newborn screening programs reveal many more babies are born with Fabry disease than the historical estimate indicates; and

WHEREAS, health care providers and families should be aware of the many Fabry disease symptoms and if warranted, obtain a GLA gene test that can definitively assess the presence of this treatable disorder;

NOW, THEREFORE, I, BRIAN SANDOVAL, GOVERNOR OF THE STATE OF NEVADA, do hereby proclaim  April 2018 as

 FABRY DISEASE AWARENESS MONTH IN NEVADA

 

 Proclamation Seal Only                         Signatures of Governor Brian Sandoval, Barbara Cegaske and Scott Anderson