Proclamation Header

 

WHEREAS, Heterotaxy syndrome is a congenital condition that affects the development, placement and presence of internal organs; and

WHEREAS, Heterotaxy syndrome affects many body systems and requires a team of specialists for treatment; and

WHEREAS, families struggle to educate medical teams and are often the only common thread between medical specialties; and

WHEREAS, mortality is high, but due to lack of tracking and research, the exact numbers are unclear; and

WHEREAS, those with Heterotaxy syndrome that survive to adulthood find their condition largely unknown to the community; and

WHEREAS, Heterotaxy Syndrome Awareness Day provides an opportunity for families whose lives have been affected to celebrate life and to remember loved ones lost, to honor dedicated health professionals, and to meet others and know they are not alone; and

WHEREAS, this day is an opportunity to share experiences and information in order to raise public awareness about Heterotaxy syndrome;

NOW, THEREFORE, I, BRIAN SANDOVAL, GOVERNOR OF THE STATE OF NEVADA, do hereby proclaim  May 4, 2017 as

 HETEROTAXY SYNDROME AWARENESS DAY IN NEVADA

 

 Proclamation Seal Only                         Signatures of Governor Brian Sandoval & Barbara Cegaske